We are SO close to December. Which also means that we are getting close to Advent.
Advent has got to be one of my favorite times of the year. There is such expectancy and warmth.
I was trying to ask myself why I like Christmas so much. Every answer I could come up always came back to hope.
This is the season of hope. And expectant hope.
Jesus has already come. We expect to celebrate.
He is going to come again. We are expectantly waiting.
I have to confess. I have been dreading the Christmas season.
It is busy at church.
At home.
Out shopping.
And to a woman who has fibromyalgia and chronic fatigue, that sounds terrible.
This is my fourth Christmas having a chronic illness. By now, I have been around the block to know what the holidays will mean for my emotions, body, disease, etc.
As I was relaxing into this feeling of disappointment and dread, I realized that just wasn't acceptable to me.
Ergo. I've been trying to catch myself each time the stress and dread starts to take over and remind myself.
This is a joyful thing. I don't have to dread it.
This is one of my favorite things. I don't have to put a ton of energy into it.
This is a blessed Christmas.
Because.
Jesus has already come. I expect to celebrate that.
He is going to come again. I am expectantly waiting.
I invite you to join me for a blessed Christmas this year. My plan is to blog throughout the Advent season as I explore it in a new way. Tune in back here starting December 1. Let's go through this season in hope together.
Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts
Wednesday, November 29, 2017
Tuesday, February 2, 2016
embracing insomnia
This evening, I googled. My sleep schedule is to the point that I just do not know what to do. I am tired all of the time. Generally, I go to bed by 11 or 12 and lie in my bed wide awake until 2...3...4... or on the really bad nights even 5 in the morning. I celebrate the times when I have fallen asleep by 2. It's a pattern now that I hate, but don't know how to get rid of. I've stayed up all night hoping it would make me so tired I could sleep the next night, but that didn't work. I do all the things you are supposed to do to encourage sleep...
Well, anyhow. This evening, I googled. And I came to the decision that this night, instead of wasting hours just laying there being so completely awake, I would just do something productive instead. So here I am at two in the morning on the couch. I've been working on church things (I have an event coming on Friday and Saturday), and feeling the creative bug biting. Maybe in these hours I'll find new inspiration. Maybe my prayers will feel more deep. (Tonight we're praying for Uncle Eli traveling!) Maybe I'll become so exhausted that I turn into a giant crab tomorrow. Whatever these hours have in store, I'm ready for it. It's better than tossing and turning on my aching body in that bed that feels like an enemy with whom I desperately need to get along.
Well, anyhow. This evening, I googled. And I came to the decision that this night, instead of wasting hours just laying there being so completely awake, I would just do something productive instead. So here I am at two in the morning on the couch. I've been working on church things (I have an event coming on Friday and Saturday), and feeling the creative bug biting. Maybe in these hours I'll find new inspiration. Maybe my prayers will feel more deep. (Tonight we're praying for Uncle Eli traveling!) Maybe I'll become so exhausted that I turn into a giant crab tomorrow. Whatever these hours have in store, I'm ready for it. It's better than tossing and turning on my aching body in that bed that feels like an enemy with whom I desperately need to get along.
Wednesday, January 6, 2016
on a bad day
Today was a fibro flare type day. Or a migraine day. Or something. It was just a lot of pain day.
I used today, stuck in my bed in a darkened room, to reflect on my chronic illness. I tried to ask myself how I feel about having chronic pain? So much of my time is spent coping, planning, adjusting, and trying to learn how to manage... I'm not sure how much effort I've put into understanding my feelings about pain.
I know I feel guilty most of the time. I know this is a false guilt -- what's happened to me is not my fault, and I can't help it. But every time someone helps me, excuses me, tells me how sorry they are for me... I feel guilty that they are negatively affected by me. What you know and how you feel aren't exactly the same always. I don't want to feel guilty, but I know that I often do.
Here are a couple blog posts I read today while trying to process:
Dreaming Big
10 Conversations to Have About Chronic Pain
I used today, stuck in my bed in a darkened room, to reflect on my chronic illness. I tried to ask myself how I feel about having chronic pain? So much of my time is spent coping, planning, adjusting, and trying to learn how to manage... I'm not sure how much effort I've put into understanding my feelings about pain.
I know I feel guilty most of the time. I know this is a false guilt -- what's happened to me is not my fault, and I can't help it. But every time someone helps me, excuses me, tells me how sorry they are for me... I feel guilty that they are negatively affected by me. What you know and how you feel aren't exactly the same always. I don't want to feel guilty, but I know that I often do.
Here are a couple blog posts I read today while trying to process:
Dreaming Big
10 Conversations to Have About Chronic Pain
Monday, November 16, 2015
homemade bibimbap
In the span of a couple of weeks, my life has dramatically changed. My health has soared to new heights which I had almost begun to think was impossible. I feel like each day I make a gain. As things continue to change, I will have more to say on the matter. But for right now, praise the Lord that we have hit on the medicine that is going to carry me into winter in the best possible health.
Last week I worked more than I have since August. One fun thing I did at the church was to set up harvest decor in the narthex, sanctuary and do a new chalk drawing on the Cafe sign.
For dinner tonight, I had a huge craving to make Korean bibimbap. So Kelsey and I headed to World Market to seek out the one ingredient I didn't have which is most necessary for bibimbap: gochujang. Gochujang is like a spicy chile paste, and it is delish. I mixed it with some honey and sesame seed oil and folded it into my rice. In another pan, I sautéed shredded carrots and baby spinach in sesame seed oil and then added ground beef that Kelsey had pre-cooked. You fold this into the rice as well and fry up an egg sunny side up so that it is still runny and eat this over the rice. You can add in other things, like I added onion flakes and some cheese, but you could also add mushrooms or whatever veg or kimchi or anything you have laying around. I just think it is so easy, and I love the flavoring.
Last week I worked more than I have since August. One fun thing I did at the church was to set up harvest decor in the narthex, sanctuary and do a new chalk drawing on the Cafe sign.
For dinner tonight, I had a huge craving to make Korean bibimbap. So Kelsey and I headed to World Market to seek out the one ingredient I didn't have which is most necessary for bibimbap: gochujang. Gochujang is like a spicy chile paste, and it is delish. I mixed it with some honey and sesame seed oil and folded it into my rice. In another pan, I sautéed shredded carrots and baby spinach in sesame seed oil and then added ground beef that Kelsey had pre-cooked. You fold this into the rice as well and fry up an egg sunny side up so that it is still runny and eat this over the rice. You can add in other things, like I added onion flakes and some cheese, but you could also add mushrooms or whatever veg or kimchi or anything you have laying around. I just think it is so easy, and I love the flavoring.
Tomorrow I'm looking forward to sprucing up the house a bit and getting my ideas more clearly developed for our upcoming Advent Labyrinth. I've gotten quite a bit figured out today, but I hope to have all the details hashed out tomorrow. In the evening, I'm going to an online 'training' of sorts for IF leaders called IF:Visioncast, and I'm pretty pumped about that. We are hosting our next Table dinner on Sunday, so I also want to figure out how I'm setting the table and exactly what the menu will be, as well. PLUS. I scheduled a phone date with Aunt Jane. Should be a good Tuesday. :)
Sunday, October 25, 2015
shadows & light
Well, all in all, today felt very successful. I was able to teach Sunday School and stayed through all of church. I was so exhausted, and barely heard the message, but I made it. And when I got home (in an effort not to fall asleep) I made myself spaghetti for lunch, watched a movie, talked to Grandma, played some games, made bread, and did pretty much anything else to keep my eyes open. It was a battle, but I won. Here's a couple of photos from the beautiful afternoon. Hoping for a great day tomorrow, too!
Tuesday, September 29, 2015
eight
Today I feel very accomplished. One meeting down for church leadership, three children's events put on the calendar, only one room left to clean in the house and a little bit of vacuuming, worship team practice, Dexter's nails cut, and a little energy to spare. I got my prescriptions ready to be filled tomorrow, and everything is ready to be taken to the second-hand store for donation.
Tonight I also talked to Oliver for awhile. Last week I called him and left a message apologizing for some unkind things I had said about him to our mutual friends and my resentful feelings toward him over the past few years. I wanted him to know that I am not angry, and I was wrong to treat him the way I did, no matter what perceived wrong he had done to me. He had texted me back that night and asked if it was okay if he called me this week so we could talk, and I agreed. I wasn't quite sure what this conversation would be like, but as soon as we got on the phone, he thanked me for leaving the message and apologizing, but said that he immediately wanted to call me back to say that he knew that a lot of my feelings were warranted because he knew he had behaved like a jerk. And then he, too, apologized. Which was like wow. Who would have thought that we would end up at the point where we would both be able to say, "I was wrong," and truly mean it? It meant a lot to me. But that conversation out of the way, we caught up on life, and it was just nice. I've always hoped that I would be able some day to look back on the last couple years of college and remember more of the good parts than the bad, and I think today's conversation was a huge step in that direction.
Well now I'm off to bed. It's a nostalgic sort of grey day that I always try to keep busy on. I think I succeeded in that today. Always...
Tonight I also talked to Oliver for awhile. Last week I called him and left a message apologizing for some unkind things I had said about him to our mutual friends and my resentful feelings toward him over the past few years. I wanted him to know that I am not angry, and I was wrong to treat him the way I did, no matter what perceived wrong he had done to me. He had texted me back that night and asked if it was okay if he called me this week so we could talk, and I agreed. I wasn't quite sure what this conversation would be like, but as soon as we got on the phone, he thanked me for leaving the message and apologizing, but said that he immediately wanted to call me back to say that he knew that a lot of my feelings were warranted because he knew he had behaved like a jerk. And then he, too, apologized. Which was like wow. Who would have thought that we would end up at the point where we would both be able to say, "I was wrong," and truly mean it? It meant a lot to me. But that conversation out of the way, we caught up on life, and it was just nice. I've always hoped that I would be able some day to look back on the last couple years of college and remember more of the good parts than the bad, and I think today's conversation was a huge step in that direction.
Well now I'm off to bed. It's a nostalgic sort of grey day that I always try to keep busy on. I think I succeeded in that today. Always...
Monday, September 14, 2015
simplicity
This evening was our IF: Pray event. This morning's symptoms were still intense, but it had mostly subsided by 3:30. I guess I was too in the thick of it all because I totally forgot to take any pictures of the evening. Oops. We had four tables set up in the fellowship hall with vases of baby's breath and a floating candle in the center of each. We put up a strand of clear Christmas lights, and I set up a wooden drink cart as an info station with one of Grandma's lace tablecloths over it, the information in picture frames, and some more baby's breath. In the corner of the room, we put down a rug and had our stools on it and podium in front of it. With the help of Pastor Bev, I made coffee for the ladies, and we had a good two hours of prayer, discussion, and worship. I am very glad that we did it.
Something I've been considering for awhile (the major principles I've been considering for years) and have finally decided I'm going to try to implement to some degree in my life is minimalism. There is so much about my life that seems unmanageable and especially living in such a small space, it seems like my possessions can kind of take over the space if only even a couple of things are out of place. I pared down when I moved here, but I think it is time to pare down again with the mindset of not replacing unless I am in a different season of life that calls for a true need of an item. I know that my greatest peace of mind house-wise is when my kitchen is clean. But if all my areas were simple to clean and had ample space because I had only exactly what I need.... Yes. That is ideal. So I've been reading up and watching YouTube videos about how to start the decluttering process, how to create a capsule wardrobe, etc. so I can figure out what parts of living light are a good fit for me. I sorted one bookshelf today. And then I took a break and read one of the books before putting it in the 'get rid of' pile (The Magician's Elephant by Kate DiCamillo). And tomorrow I will continue.
(21 Benefits of Owning Less)
Something I've been considering for awhile (the major principles I've been considering for years) and have finally decided I'm going to try to implement to some degree in my life is minimalism. There is so much about my life that seems unmanageable and especially living in such a small space, it seems like my possessions can kind of take over the space if only even a couple of things are out of place. I pared down when I moved here, but I think it is time to pare down again with the mindset of not replacing unless I am in a different season of life that calls for a true need of an item. I know that my greatest peace of mind house-wise is when my kitchen is clean. But if all my areas were simple to clean and had ample space because I had only exactly what I need.... Yes. That is ideal. So I've been reading up and watching YouTube videos about how to start the decluttering process, how to create a capsule wardrobe, etc. so I can figure out what parts of living light are a good fit for me. I sorted one bookshelf today. And then I took a break and read one of the books before putting it in the 'get rid of' pile (The Magician's Elephant by Kate DiCamillo). And tomorrow I will continue.
(21 Benefits of Owning Less)
Thursday, September 10, 2015
Rough changes
It has been a very long week of icky feelings. My new medicine is hard to adjust to. There is a lot of pain and illness. And a lot of me trying to get by and get things done in spite of it all. I hope each day that I am getting better and more acclimated, but we shall see how it all turns out after the next week.
It all leaves me feeling a bit uninspired. I'm trying to keep the joy up and my productivity up, but it's hard. Even right now I am having some trouble with sentences. So I think that is it for now.
It all leaves me feeling a bit uninspired. I'm trying to keep the joy up and my productivity up, but it's hard. Even right now I am having some trouble with sentences. So I think that is it for now.
Tuesday, September 1, 2015
Lyme free
There are a lot of things that I really want to do with my life. I haven't really written them down all bucket list style (not sure I subscribe to that), but I have goals of things that would be really lovely to achieve. Simple things, even. Declutter my movie collection for one. Make a quilt. Develop all the photos I took for Photo I in college. I'm not sure why all of these things come flooding to mind once I hit migraine postdrome, but they have.
Today I also learned that I do not have Lyme disease. I'm not exactly sure how to feel about it. You would think that I would just feel relieved not to have it, but it kind of feels defeating. Because in a way it might have been simpler to have Lyme disease. But that is not what happened, so I can't dwell on that. I just get to keep living this life that is mine, lyme free.
Backtracking just a bit, on Friday after Kelsey was done with soccer a few people came over and watched When a Stranger Calls and had homemade pizza with us. I was having a really high pain day with my hands so Kels did a lot of the physical labor in making the pizza. We had Jeff, Andrea, Nate, and Katie (I think that was her name, but it was my first time meeting her). We didn't end up starting the movie until maybe 10, and it is kind of a jump-scare type movie. Not really scary to me, but it can be startling. Kels scares easily, so we were pretty amused watching her scream. The girls both ended up leaving early. Andrea was nervous and Katie was tired, but the guys stayed pretty late even after the movie ended, and we had a big discussion about personality type. I'm starting to really feel like I have a friend group. Which is so nice. It was fun to have people who I have inside jokes with and can laugh easily around.
On Saturday, Kels convinced me to go with her to a barbecue which became a hangout because of rain at a girl named Amy's house. We met a lot of other people there, and I knew a couple of them already which was nice. We played a few games like charades-type, catchphrase, etc. and then they wanted to go play ultimate frisbee so I went out to watch them. It started raining, and Amy and I went back inside. She also has chronic illness/fibromyalgia issues so we talked shop over mint tea. She had some good gluten free food advice for me, and I advised her about my excellent body pillow. Once everyone else came back in and dried off, they played another game, but my brain fog was rolling in real heavy so I just watched. It can be really exhausting to be around people and even more exhausting to be in a new place with new people so first impressions are just nearly impossible for me, but Amy added me on facebook and sent me a nice message yesterday, so I feel like I made another friend. Oh! And! Kelsey and I got invited to go with a group to Amy's family's cottage on Lake Louise at the end of September. So that's pretty exciting. I'm praying I feel well enough for that because... yes... friends!
PS: Victory. Bennet made it THE WHOLE WAY through Sunday school.
Thursday, August 27, 2015
old joy
I've been staring at a blank screen for ten minutes. Not sure what exactly I want to write, but I do want to write. It was a long week last week. The internet at Dad and Mom's house frustrates me which made me want to do almost nothing on the internet besides what I needed to for my job. Besides that I was pretty much exhausted by 9:30 every night and ready for bed soon after. HISability is extremely rewarding and definitely my favourite week of the year, but it is so tiring in a normal case... and quadruply so in the year when I am diagnosed with chronic fatigue and fibromyalgia. While I was at camp, the doctor called me to check in on my wheat elimination diet and general health and to tell me that I have an initial positive for Lyme disease. There is more testing that has to be done, and this doesn't mean I definitely have it, but it is a maybe. I don't know if that is a better or worse thing in my mind now. But whatever it is, it is a possibility as much as it was before. So it is okay.
Thought I would upload some pictures from when I was home and Courtney and I went on a rainy Sunday afternoon adventure...
Today saw me ordering the new curriculum for next quarter for KidCentral. We are going to try The Gospel Project and see if that works out to having more substance than the Group one we were using. I also was working on choosing an Advent theme and looking into a VBS for 2016. Trying to get ahead in planning. I'll probably work through tomorrow, too, since I took a break early on in the week. This evening, Kelsey and I met our friend Marisol at a laundromat to wash all her family's clothes, bedding, towels, etc. so that their house will be absolutely clean for her sister who will hopefully be coming home from the hospital soon. They are having the house professionally cleaned; we did at least 16 loads of laundry in about four hours. Wasn't too bad, and I was glad that we could help them out in some way.
Thought I would upload some pictures from when I was home and Courtney and I went on a rainy Sunday afternoon adventure...
Today saw me ordering the new curriculum for next quarter for KidCentral. We are going to try The Gospel Project and see if that works out to having more substance than the Group one we were using. I also was working on choosing an Advent theme and looking into a VBS for 2016. Trying to get ahead in planning. I'll probably work through tomorrow, too, since I took a break early on in the week. This evening, Kelsey and I met our friend Marisol at a laundromat to wash all her family's clothes, bedding, towels, etc. so that their house will be absolutely clean for her sister who will hopefully be coming home from the hospital soon. They are having the house professionally cleaned; we did at least 16 loads of laundry in about four hours. Wasn't too bad, and I was glad that we could help them out in some way.
Wednesday, August 12, 2015
Back
Okay, so long time no blog. I can't even try to summarize all the things that have happened since I last updated. Well, I could, but I think it would end up quite boring, and I would certainly be bored writing it.
Physically I am feeling better, generally. My new doctor has put fibromyalgia and chronic fatigue on my record as working diagnoses. I am massively Vitamin D deficient and so am taking 3000 IU a day plus another 50,000 IU weekly. I wasn't sure how VBS would effect me, but it's been a bit of a headache and a couple days laying low. I'm really hoping that tomorrow is back to usual speed. Last week, we played a little bit of volleyball just hitting it around, and I messed up my thumb somehow. That seems to be mostly healed apart from a bruise and hurting a little, but now not much more than is "normal" for my hands to hurt.
VBS went really well. A few kinks here and there, but those were even just tiny things... mostly slight miscommunication. The big things to come out of VBS that I will be working on are creating a better relationship with the International churches and figuring out our social media policy. I have a lot of fresh ideas for the coming year, as well, and I hope to have a basic 2016 calendar put together by the end of the week. Much excite.
This evening, if I am feeling well enough, I'm going to spend some time redecorating in the children's area. I have a lot of carnival type decor that is ready to go up, but I haven't felt up to it before now. If I run out of energy, I'll be working on writing an entry for a 30 day devotional for chronically ill people that my friend Beret is working to put together.
Either way, it's now time for another cup of coffee, some more good music, and I'm going to do a "brain dump." Put all of my big ideas on a paper so that I can remember them when I get the time to really invest in making them reality. Here's to hoping that I can pick up the blogging again!
Physically I am feeling better, generally. My new doctor has put fibromyalgia and chronic fatigue on my record as working diagnoses. I am massively Vitamin D deficient and so am taking 3000 IU a day plus another 50,000 IU weekly. I wasn't sure how VBS would effect me, but it's been a bit of a headache and a couple days laying low. I'm really hoping that tomorrow is back to usual speed. Last week, we played a little bit of volleyball just hitting it around, and I messed up my thumb somehow. That seems to be mostly healed apart from a bruise and hurting a little, but now not much more than is "normal" for my hands to hurt.
VBS went really well. A few kinks here and there, but those were even just tiny things... mostly slight miscommunication. The big things to come out of VBS that I will be working on are creating a better relationship with the International churches and figuring out our social media policy. I have a lot of fresh ideas for the coming year, as well, and I hope to have a basic 2016 calendar put together by the end of the week. Much excite.
This evening, if I am feeling well enough, I'm going to spend some time redecorating in the children's area. I have a lot of carnival type decor that is ready to go up, but I haven't felt up to it before now. If I run out of energy, I'll be working on writing an entry for a 30 day devotional for chronically ill people that my friend Beret is working to put together.
Either way, it's now time for another cup of coffee, some more good music, and I'm going to do a "brain dump." Put all of my big ideas on a paper so that I can remember them when I get the time to really invest in making them reality. Here's to hoping that I can pick up the blogging again!
Monday, July 20, 2015
There is much
Sometimes I feel very small. I have felt tiny...useless...fragmented the past few days. Each day, I have been working so hard to run after joy on what feel like broken legs. A broken heart trying to cultivate pieces of hope and project it outward. I've called those who are closest to me... and I just can't talk about it. I'm not sure what is driving this all, and I'm not sure it's entirely bad.
In a way, I'm grieving the person I lost when all this chronic illness stuff took the large hold it now has. And I think that is important. Acknowledging the person I was... the person who was lost... the person I thought I would be. And accepting that there is a new Britany in place of the old. And she is not a bad person. She is a becoming person.
There is still an image in my head of a healthier me in the future. Prettier, thinner, the subtle signs of sickness that most people miss now gone; she is laughing. Maybe with her fiance in a field for their engagement pictures, smiling with her head on his shoulder. Or smiling to herself as she watches her baby sleeping in the crib. Or just out doing a normal bit of shopping, stopping to grab a coffee on the way without worrying how tired it is going to make her.
I don't know if I can achieve any better health. But I think that's why I've been a bit teary recently. I'm just not ready to give up the idea that maybe I can feel better. Maybe someday I won't feel like this all the time. Maybe someday my "normal" will look more like the normal of other people my age. I'm trying to know how to deal with all of this in its many dimensions. Sometimes it just feels like so much. And I'm expected to be rational and kind and graceful through it. It's a lot of pressure, and often I'm just not sure how to let out the pent up frustration at it all. And the grief... Chronic illness is said to be an infinity of loss. That's what makes it most difficult to bear, I think.
There's just been a lot rolling around in my head. And I truly don't know how to express it. The past few days have not been horrible even though I have been a bit down. In fact, I think I've been succeeding more than normal in the past few days... really the past three weeks, even. The last time I wrote was Thursday. I'll try to sum up what has happened since then.
Friday - I know we went to IHOP at some point this day. It is becoming a staple. We love seeing our favourite waitress, Cho, and it's always an interesting time there. This time included a man who was elderly and seemed as though maybe he was running away from home? He was very jolly. There is not much more than I remember about this day. This is how time passes for me. I forget quickly. I think maybe we watched a movie.
Saturday - I remember much more about Saturday because we were supposed to play tennis at 7 pm with Jeff and Nate (Kelsey's friends who I hope become mine, as well), but it was looking like rain all day, and I was not feeling well at all. There was a lot of nausea involved. Details on that part of the day are sketchy, as well as what we did all day long, but I know at some point, I cleaned our house, we had supper, and I seriously considered pleading out of it all. But. I really would like to have friends, so I went along to our doubles tennis and tried to be sunshiney. I warned the guys from the get go that I am not very good at tennis. Talk about a self-fulfilling prophecy. I was awful. Maybe 5 good hits the whole night. Nate was really patient with me, and we actually almost won, but I still feel a little bad. I'm hoping they will play with us again so they can see how much my health impacts my skills. For once, I do remember how bad I felt. That memory hasn't washed away yet. Probably because of how embarrassing it was.
Sunday - When I woke up on Sunday morning, I was worried that I wasn't going to be able to go to church at all. So much nausea. I was pleased that my muscles hadn't locked up as much as I thought they might. I made it through Sunday school. Bless Pastor Steve for letting me go home to rest. It wasn't necessary for me to be there to present. But I always do feel guilty about the onsets of my ill bouts. By the evening I was feeling better. I tried to keep moving every so often throughout the afternoon so I wouldn't get sore, and then in the evening Kels and I played some softball and tennis. Then we had an impromptu trip to Jackson to see the lighted falls at Cascades Park.
Monday - Today I tried to take my day easy so that I have energy for the doctor tomorrow. It was boring. I didn't like it. I didn't work because I've been consumed with that lately and could really use to not put so much pressure on myself. I didn't feel so physically bad today, but I didn't really feel good. And I had to work for joy. I'm not feeling worthy of joy or goodness or much right now. I'm ready for tomorrow to be over. There is a lot riding on it. I'm nervous, but not worried. I just really hope this is the right stepping stone for once.
Sorry I'm a downer this entry. I'm just trying to work it all out.
In a way, I'm grieving the person I lost when all this chronic illness stuff took the large hold it now has. And I think that is important. Acknowledging the person I was... the person who was lost... the person I thought I would be. And accepting that there is a new Britany in place of the old. And she is not a bad person. She is a becoming person.
There is still an image in my head of a healthier me in the future. Prettier, thinner, the subtle signs of sickness that most people miss now gone; she is laughing. Maybe with her fiance in a field for their engagement pictures, smiling with her head on his shoulder. Or smiling to herself as she watches her baby sleeping in the crib. Or just out doing a normal bit of shopping, stopping to grab a coffee on the way without worrying how tired it is going to make her.
I don't know if I can achieve any better health. But I think that's why I've been a bit teary recently. I'm just not ready to give up the idea that maybe I can feel better. Maybe someday I won't feel like this all the time. Maybe someday my "normal" will look more like the normal of other people my age. I'm trying to know how to deal with all of this in its many dimensions. Sometimes it just feels like so much. And I'm expected to be rational and kind and graceful through it. It's a lot of pressure, and often I'm just not sure how to let out the pent up frustration at it all. And the grief... Chronic illness is said to be an infinity of loss. That's what makes it most difficult to bear, I think.
There's just been a lot rolling around in my head. And I truly don't know how to express it. The past few days have not been horrible even though I have been a bit down. In fact, I think I've been succeeding more than normal in the past few days... really the past three weeks, even. The last time I wrote was Thursday. I'll try to sum up what has happened since then.
Friday - I know we went to IHOP at some point this day. It is becoming a staple. We love seeing our favourite waitress, Cho, and it's always an interesting time there. This time included a man who was elderly and seemed as though maybe he was running away from home? He was very jolly. There is not much more than I remember about this day. This is how time passes for me. I forget quickly. I think maybe we watched a movie.
Saturday - I remember much more about Saturday because we were supposed to play tennis at 7 pm with Jeff and Nate (Kelsey's friends who I hope become mine, as well), but it was looking like rain all day, and I was not feeling well at all. There was a lot of nausea involved. Details on that part of the day are sketchy, as well as what we did all day long, but I know at some point, I cleaned our house, we had supper, and I seriously considered pleading out of it all. But. I really would like to have friends, so I went along to our doubles tennis and tried to be sunshiney. I warned the guys from the get go that I am not very good at tennis. Talk about a self-fulfilling prophecy. I was awful. Maybe 5 good hits the whole night. Nate was really patient with me, and we actually almost won, but I still feel a little bad. I'm hoping they will play with us again so they can see how much my health impacts my skills. For once, I do remember how bad I felt. That memory hasn't washed away yet. Probably because of how embarrassing it was.
Sunday - When I woke up on Sunday morning, I was worried that I wasn't going to be able to go to church at all. So much nausea. I was pleased that my muscles hadn't locked up as much as I thought they might. I made it through Sunday school. Bless Pastor Steve for letting me go home to rest. It wasn't necessary for me to be there to present. But I always do feel guilty about the onsets of my ill bouts. By the evening I was feeling better. I tried to keep moving every so often throughout the afternoon so I wouldn't get sore, and then in the evening Kels and I played some softball and tennis. Then we had an impromptu trip to Jackson to see the lighted falls at Cascades Park.
Monday - Today I tried to take my day easy so that I have energy for the doctor tomorrow. It was boring. I didn't like it. I didn't work because I've been consumed with that lately and could really use to not put so much pressure on myself. I didn't feel so physically bad today, but I didn't really feel good. And I had to work for joy. I'm not feeling worthy of joy or goodness or much right now. I'm ready for tomorrow to be over. There is a lot riding on it. I'm nervous, but not worried. I just really hope this is the right stepping stone for once.
Sorry I'm a downer this entry. I'm just trying to work it all out.
[Loving my antioxidant rich breakfast from the other day]
[At the park with Dex on Sunday]
Sunday, July 12, 2015
Let me tell you a story
There is a lot of freedom in writing about things when they are not exactly fresh to you. Our minds influence our memories in that our current feelings change the way we remember previous happenings. But the beauty in this is that you can craft a much better story with a plot line running throughout the memories because you already know what is going to happen and where the action is going to turn. This is the nice thing about writing in larger chunks instead of portioning it down each night and reflecting on my day. Since I have been up north and with the family, I felt no need to blog. But now, I am aching to be back there. And so... I will tell you the story of my adventure to my hometown. And in doing so, I will tinge the memories with a bit of happy sad feelings. But I don't care. Because I want to put down in print what I did since I last wrote, and we can share in my happy sad missing of home.
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The drive to my hometown took longer than usual. Not as long as the snowstorm conditions that seemed to occur every Thanksgiving return trip in my college years, but longer than when the driver goes 3 miles above the speed limit the whole way. I am content to do this drive the slower way. Which I am certain is the safest and least prone to being ticketed for anything. Anyhow, the drive typically ends up around the three hour mark, but this specific trip ended up near four hours. I think this could be due in part to a stop in a town that Kelsey and I had never been to. We needed supper, and we needed supplies. So naturally we got lost on our way to Taco Bell, drove a large loop to get back toward the business area of town, and ended up not at Taco Bell at all. After eating in a parking lot, we popped into the store and hustled around aisles looking for the items on our list. And bought hats that were not on our list. Because when one is going on vacation, of course one needs a sun hat to wear during the hours you are going to be outside reading a modern classic and suntanning. All of this thought while saying aloud, "I'm not really a hat person, but..." Into the shopping basket they went. Or rather, our arms. Kelsey and I have a habit of always looking at shopping carts or baskets and deciding not to bring them with us. Of course, whenever we do this, we always end up needing them. It is a pattern of our lives.
New hats on our heads, we headed back out on the road. We still had hours to go, and it had taken us nearly an hour to bop around the town. This, in retrospect, is one of my favourite parts of the trip. And really, it's one of my favourite parts of our friendship. Kelsey is the kind of person who isn't opposed to urging something that should be mundane toward the magical adventure. We revel in our commonplace shenanigans. Everyday is full of wonderful joys.
Once we made it to my tiny homeplace, we were ready for rest. Our fourth of July festivities were small. My family wandered in and out; to and from work, Independence day parties, parades, etc. Kelsey and I mostly showed our patriotism in our clothing. I wouldn't say that I am terribly patriotic, but I do enjoy Americana colors and patterns. Celebration mainly centered in relaxing, eating the traditional barbecued chicken from the bookstore, and quite a bit of guilty pleasure watching of The Vampire Diaries. What's more American than taking time off from work, eating, and just hanging out?
Restfulness ended abruptly, and at five in the morning, I was on my way back to the city with my parents. It was a down and back trip in one day so that I could teach at church. A much more rushed trip than our leisurely once of two days previous. A necessary rushed trip because soon after we returned upstate, my friends starting pouring into the house for a birthday celebration for me. Mom and Dad's ice cream machine went so hard, it literally broke. We played a giant game of Apples to Apples which I nearly won... this never happens, so it must be recorded.
The 6th of July dawned, and I turned twenty five. A real adult, maybe sort of. One of my former nursing home residents assures me that someday you truly feel like an adult. Maybe around seventy. Because by then you can feel it in your bones just how old you are. But this is the most adult I have felt to this point. In some ways, this was a hard birthday for me to have; I kept remembering how different my life was a year ago, and it was hard not to consider it much better. My physical state had not deteriorated so much in July 2014. Unbeknownst to 24 year old Britany, I was on the brink of a physical breakdown. But it hadn't happened yet, and I thought I was doing really well.
Anyhow, this birthday was full of good things, but it was also full of pain. I could barely sit straight up, but this did not stop a lovely trip to Lewiston Lodge for lunch with Kelsey and Courtney. Other antics of the day mainly centered around more Vampire Diaries, but in the evening we had nachos for supper while we introduced Kelsey to Star Wars. Following our viewing, we consumed as much pie as we could stuff ourselves full of, and my lovelies gave me sweet presents. Being together is such a gift as well. We played Masterpiece (the art auction game). My character was Roxy "Big D" Warrenson, and Kelsey was Bitzy something or tother. Such a time. But it closed out the birthday well as the family came together around something that I love.
The rest of my week is a jumble of memory. I know that if I add up the hours, I spent a couple of days worth of it in bed, hours at Camp working to prepare disability camp, and hours at the nursing home with Grandma and precious other residents. A breakfast with Mom at home. A breakfast out with Dad. One evening was spent with Melissa at Kyle & Anna's house meeting their baby Naomi, eating grilled chicken, salad, and fresh blueberries under the trees outside and then retreating inside to talk until it was nearly dark. One morning was spent with Bridgette and her three little ones playing and hearing about their lives; spending quality time together to last until the next visit. One afternoon was spent with Courtney; life talks and planning sitting huddled together on her bed, working to clean together, Doctor Who episodes, and a photoshoot. One evening was spent with family friends visiting... pizza, games with their son, Dirk, and Cody. Much of the week was spent in pain. I know this as fact, but I do not remember the pain now. All that's left are the happy things I did with my time. The reality of the depth of hurt has faded.
My last morning I woke nauseous with a migraine. I was supposed to drive alone to the city. It was imperative. I thought perhaps that breakfast would improve the situation, but I hadn't even made it back to my bed after retrieving cereal before I had to run to the bathroom, dry heaving. I threw up twice. These are some of my least favourite kinds of migraine. Second to the kind of migraines where I can only sit straight up. Those are the kind that make you wish you never existed. But somehow after two rounds of medicine, sleep, fervent prayer, and a lot of determination, I packed my car, said my goodbyes, and headed back home. The drive was uneventful. It felt as though it went in slow motion. That was just yesterday... it's so surreal to me. It seems much further away. The story of today will have to be saved for another day.
For now, let's just say that it is a strange feeling when you commute from a place that has always been home to the place that is now home. Two kinds of home that you are attached to in different ways. I love each place, and I love being in each place. I am myself in both places. But maybe different versions of myself? When I am in my hometown, I feel most free... and there I feel most emotional. When I am in my new town, I feel most grown up and most confident. Strong in both situations. You are strong when you let down your guard and show your feelings, and you are strong when you do what needs to be done. Two sides of the same person.
Saturday, June 27, 2015
We carry little people
It's late, and I'm hoping for more sleep than I have been getting. Tomorrow we are teaching the story of the Good Samaritan. I am happily turning over more of the Sunday school hour to the small group leaders so they can teach the story more relative to the experience level of their kiddos. Today can mostly be summed up by saying that I spent a lot of time trying to keep my body warm and moving so that I don't tense up too much. Very sore from the Water Night, but so pleased with the response we had from it. Also pleased to have a break from events until VBS. Plenty to do, still, but at least one less thing.
I decided to participate in an Instagram tag challenge called #wecarrylittlepeople by a blog called The Lovely Collective (run by a very sweet, Christian lady named Natalie). The challenge is to post a favorite picture from childhood and create a "toast" to that little person who is still in you, celebrating and honoring their unique voice, grieving what they may have lost, and creating a safe space to tell their stories... ultimately with the goal of letting go of fears and being healed by love/sharing stories of love healing. I don't have many photos here, and I don't have any of the ones I would consider my favorite of myself from childhood, but I found one that I happened to have that I do really like. So I posted it, a "toast" to little Britany, and Natalie featured me on her Insta page! Here's what I posted in case you didn't see:
I decided to participate in an Instagram tag challenge called #wecarrylittlepeople by a blog called The Lovely Collective (run by a very sweet, Christian lady named Natalie). The challenge is to post a favorite picture from childhood and create a "toast" to that little person who is still in you, celebrating and honoring their unique voice, grieving what they may have lost, and creating a safe space to tell their stories... ultimately with the goal of letting go of fears and being healed by love/sharing stories of love healing. I don't have many photos here, and I don't have any of the ones I would consider my favorite of myself from childhood, but I found one that I happened to have that I do really like. So I posted it, a "toast" to little Britany, and Natalie featured me on her Insta page! Here's what I posted in case you didn't see:
Little darling, so many things will try to rob you of joy. Even now, it stings a little to remember how quickly you will know what sadness means. But I am so proud of you that you soldier on loving people fully… jumping in and loving with your whole heart. Try to remember to be as kind to yourself as you are to others. Don’t let your life be defined by losses. And don’t let your identity be rooted in pain. It’s important to tell yourself the truth gently and constantly. Be confident in things that are constant, and don’t worry over the things that are temporary. Treat yourself with respect, little one. You are precious and worthy of being cared for. You are a beautiful sunshine. Just keep spreading that sunshine around. Your joy is contagious.Now I'm drinking my cup of rooibos tea and editing some photos before tucking up in bed. Here's a sneak peek...
Friday, June 26, 2015
Summer is for fun
What a day. Today the supreme court ruled that states cannot deny same-sex couples the right to marry. It has been a whirlwind of Facebook statuses, twitter updates, instagram posts, and news broadcasts. My response to the ruling was I suppose rather veiled. I posted parts that stuck out to me from the blog post issued by the bishops of Free Methodist Church USA. You can read their post here because I did appreciate hearing the official stance of the denomination: FMCUSA post
There was a lot tucked into the post that I thought was really applicable to any person at any time.. not just this specific issue. Any who.
I didn't make it up at 8, but I did make it up in relatively good time considering that my sleep schedule is so whack. It's not a schedule at all... I just stay awake and awake. But. I think I got some good sleep, stretched when I woke, and got to work making sure all the details were set for Water Night. Kels was supposed to be back at 11:30ish, and we were going to get waffles, but that didn't happen. So for lunch I had a hot dog and some power greens (kale, spinach, mizuna, chard) with blue cheese dressing.
Kels and I ran to Biggby for our BOGO coffee, and then set up for the event. It was a little bit chilly, and I was worried because it was a tinge windy, but it settled down as the event started. Right at start time there was no one there. I said a little prayer... "God. We have this all set up. Send me a couple kiddos." AND I GOT SEVEN. I knew one of them. Six new friends for KidCentral!! They had a blast playing water balloon toss, water relay, water dodge ball, wet obstacle course, eating popsicles, and doing slip and slide human bowling. They learned a few facts about water quality and hunger and came up with ideas about how they can help kids who are hungry and thirsty. They were pretty stunned to learn that every 20 seconds a child dies because they don't have good water to drink.... Statistically about 5,000 children die each day from poor water, and 250 die from hunger or poverty. The kids were right on it. They were shocked that the return change from recycling a soda pop can feeds someone a meal. I hope it made an impact. I know they had fun. And they got me soaked! Happy child voices screamed "Get Miss Britany!!" And they did. And Kelsey.
My "fibromyalgia" body is feeling it. I did a lot of running, throwing, playing, laughing, moving, etc. I can literally feel how much fun we all had together. I'm happy now to try to put my insomniac self to bed, and hopefully surface well tomorrow!!
There was a lot tucked into the post that I thought was really applicable to any person at any time.. not just this specific issue. Any who.
I didn't make it up at 8, but I did make it up in relatively good time considering that my sleep schedule is so whack. It's not a schedule at all... I just stay awake and awake. But. I think I got some good sleep, stretched when I woke, and got to work making sure all the details were set for Water Night. Kels was supposed to be back at 11:30ish, and we were going to get waffles, but that didn't happen. So for lunch I had a hot dog and some power greens (kale, spinach, mizuna, chard) with blue cheese dressing.
Kels and I ran to Biggby for our BOGO coffee, and then set up for the event. It was a little bit chilly, and I was worried because it was a tinge windy, but it settled down as the event started. Right at start time there was no one there. I said a little prayer... "God. We have this all set up. Send me a couple kiddos." AND I GOT SEVEN. I knew one of them. Six new friends for KidCentral!! They had a blast playing water balloon toss, water relay, water dodge ball, wet obstacle course, eating popsicles, and doing slip and slide human bowling. They learned a few facts about water quality and hunger and came up with ideas about how they can help kids who are hungry and thirsty. They were pretty stunned to learn that every 20 seconds a child dies because they don't have good water to drink.... Statistically about 5,000 children die each day from poor water, and 250 die from hunger or poverty. The kids were right on it. They were shocked that the return change from recycling a soda pop can feeds someone a meal. I hope it made an impact. I know they had fun. And they got me soaked! Happy child voices screamed "Get Miss Britany!!" And they did. And Kelsey.
My "fibromyalgia" body is feeling it. I did a lot of running, throwing, playing, laughing, moving, etc. I can literally feel how much fun we all had together. I'm happy now to try to put my insomniac self to bed, and hopefully surface well tomorrow!!
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